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New frailty measures paper

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We have a new paper in the journal Age and Aging! Entitled, "A comparison of frailty measures in population-based data for patients with colorectal cancer", the paper compares different ways of assessing frailty in a national bowel cancer cohort. This matters because outcomes from bowel cancer vary by age and it is not clear how...

Yorkshire Cancer Research Yorkshire Stars!

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We were very pleased to be invited to the launch of the Yorkshire Cancer Research Yorkshire Stars campaign at the Thackray Medical Museum in December.  The Yorkshire Stars campaign is showing support for people affected by cancer. Here is our team with our stars, dedicated to people we know affected by cancer.

West Yorkshire & Harrogate Cancer Alliance inclusive screening videos

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Written by Kate Bartholomew In 2017 I was diagnosed with bowel cancer. I was a complicated case, for various reasons, but one of my advantages was being able to talk with the medical personnel and being able to understand most of what they were saying to me. Not everyone is able to communicate so readily...

PPG input into national NHS colonoscopy guide

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We were very pleased to be asked to contribute to the new NHS England Colonoscopy, Gastroscopy and Sigmoidoscopy guides that have been produced to help patients who are experiencing long delays waiting for their procedures. Our input helped to ensure that the guides are easy to understand and written in a patient friendly way. The...

PPG presentation at YCR BCIP Nurses event

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One of our members was recently invited to present at a Yorkshire Cancer Research Bowel Cancer Improvement Programme Nurses workstream educational session to provide input from a patient experience on receiving a Lynch Syndrome diagnosis. Since NICE guidance was published in 2017 recommending that everyone diagnosed with bowel cancer be tested for the genetic condition,...

Member stories featured in the Cancer Revolution: Science Innovation and Hope exhibition

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The Science Museum Group, with support from Cancer Research UK, have created a world first exhibition ‘Cancer Revolution: Science, Innovation and Hope’. The exhibition, which begins at The Science and Industry Museum in Manchester on 22nd October, shows how far we have come in the prevention, detection, and treatment of cancer, and highlights the important challenges that still exist....

Our group has expanded!

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We are delighted to announce that following a very successful recruitment drive, we have expanded our group and we now have 12 members. You will be able to find out more about the new members of the group in the PPG member profile section in the coming weeks.  

Volunteer Opportunities

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Type of opportunity: Patient-Public Group Member Application deadline: Thursday 18th March 2021. Opportunity details: We are seeking patients, carers and members of the public with an interest in health care data to join the Bowel Cancer Intelligence (BCI) UK Patient-Public Group (PPG). These people will help us in our mission to drive the production and...

The power of healthcare data in research

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To accompany our recent post-colonoscopy colorectal cancer paper, our Patient-Public Group have written an opinion piece for the British Medical Journal. They explain the importance of deriving intelligence from healthcare data. As they say, "Being able to access and analyse the data is good, however it is only of benefit if it can be turned...