Blog

Paul Affleck, our Programme Manager, reflects on the recent use MY data “Say what you do, do what you say – trust and transparency around patient data” workshop On Thursday 5 December I attended the “Say what you do, do what you say” workshop organised by use MY data. Hosted...

One of our Research Fellows, Dr Bethany Levick, recently spoke about being a researcher at a local primary school. Last Friday (8th November) I headed out to Oakwood Co-op Academy in Gipton, to take part in their first Aspirations Day. The school had several speakers brought in by the Positive Footprints...

Charlotte Sturley BCI UK PhD Student. In June I presented some preliminary findings from my PhD research at the 18th International Medical Geography Symposium (IMGS) in Queenstown, New Zealand. Prior to the conference I attended a two-day workshop at the University of Canterbury, Christchurch with colleagues from Leeds. During the...

Emily Boldison, BCI – UK Engagement Facilitator, reports back from attending an NIHR Patient-Public Group. The involvement of patients and the public in research is becoming more and more common. However there is a concern that it becomes a box ticking exercise without real meaning. INVOLVE defines public involvement in...

Dr Hayley Fenton, reflects on her attendance at the ESA’s 26th Annual Meeting in Madrid. This month I presented my work to surgeons from the European Surgical Association (ESA), one of Europe’s most prestigious surgical organisations, at the 26th Annual Meeting in Madrid, Spain (17th-18th May). The meeting provides an...

Our Programme Manager reports back from a recent lecture at the London School of Hygiene and Tropical Medicine (LSHTM). On the 23 May Dr Ben Goldacre gave a memorial lecture at LSHTM to honour the life and work of Dr Adrian Root. Adrian Root was a GP and epidemiologist who...

Our Programme Manager, Paul Affleck, reports back from a recent Nesta/Humanly event in London. Nesta, the UK’s innovation foundation and the award-winning design studio Humanly are undertaking a research project to explore the potential of using collective intelligence design and data to improve colorectal cancer outcomes. At a recent workshop...

Pete Wheatstone is a member of our Patient-Public Group. As well as being involved in BCI UK, Pete works with cancer researchers at Universities, medical research charities, Health Data Research UK and the NIHR Royal Marsden/ICR Biomedical Research Centre as a patient representative. Here, Pete talks about the work he...

Barbara Hibbert, a member of our Patient-Public Group, reports back from a recent event at the Palace of Westminster. On Wednesday 30th January Bowel Cancer UK held a Parliamentary Reception. Bowel Cancer UK and Beating Bowel Cancer merged a year ago, which to me, as a patient, was a very...

Pete Wheatstone, member of our Patient-Public Group, reports back from the recent Britain Against Cancer Conference. It was an early start on the 4th November to get down to London for the All Party Parliamentary Group on Cancer (APPGC) Conference in London ‘Britain Against Cancer 2018: Future Priorities for Cancer Care...