We were very pleased to be invited to the launch of the Yorkshire Cancer Research Yorkshire Stars campaign at the Thackray Medical Museum in December. The Yorkshire Stars campaign is showing support for people affected by cancer. Here is our team with our stars, dedicated to people we know affected by cancer.
Written by Kate Bartholomew In 2017 I was diagnosed with bowel cancer. I was a complicated case, for various reasons, but one of my advantages was being able to talk with the medical personnel and being able to understand most of what they were saying to me. Not everyone is able to communicate so readily...
We were very pleased to be asked to contribute to the new NHS England Colonoscopy, Gastroscopy and Sigmoidoscopy guides that have been produced to help patients who are experiencing long delays waiting for their procedures. Our input helped to ensure that the guides are easy to understand and written in a patient friendly way. The...
We are delighted to be acknowledged in the recent publication ‘Establishing a colorectal cancer research database from routinely collected health data: the process and potential from a pilot study’ which was published in the BMJ Health and Care Informatics journal earlier this month. As a group, we were given the opportunity to review the publication...
One of our members was recently invited to present at a Yorkshire Cancer Research Bowel Cancer Improvement Programme Nurses workstream educational session to provide input from a patient experience on receiving a Lynch Syndrome diagnosis. Since NICE guidance was published in 2017 recommending that everyone diagnosed with bowel cancer be tested for the genetic condition,...
The Science Museum Group, with support from Cancer Research UK, have created a world first exhibition ‘Cancer Revolution: Science, Innovation and Hope’. The exhibition, which begins at The Science and Industry Museum in Manchester on 22nd October, shows how far we have come in the prevention, detection, and treatment of cancer, and highlights the important challenges that still exist....
We are delighted to announce that following a very successful recruitment drive, we have expanded our group and we now have 12 members. You will be able to find out more about the new members of the group in the PPG member profile section in the coming weeks.
Type of opportunity: Patient-Public Group Member Application deadline: Thursday 18th March 2021. Opportunity details: We are seeking patients, carers and members of the public with an interest in health care data to join the Bowel Cancer Intelligence (BCI) UK Patient-Public Group (PPG). These people will help us in our mission to drive the production and...
To accompany our recent post-colonoscopy colorectal cancer paper, our Patient-Public Group have written an opinion piece for the British Medical Journal. They explain the importance of deriving intelligence from healthcare data. As they say, "Being able to access and analyse the data is good, however it is only of benefit if it can be turned...
We have a new paper in the British Medical Journal! It compares risk-adjusted 3-year post-colonoscopy colorectal cancer (PCCRC) rates across all colonoscopy providers in England. Colonoscopies were divided into three time periods: 2005 to 2007, 2008 to 2010 and 2011 to 2013. Please read the University of Leeds press release. A plain language summary is...